The entire Chronic Myeloid Leukemia community comes together every 22nd September to raise awareness on this rare hematological disease that represents 15-20% of all leukemia in adults and the needs of patients around the world.
Chronic Myeloid Leukemia patients have very different access to effective and safe treatment’s worldwide but the whole CML community call to have not just treatment but also get a cure through the 2017 World CML Day motto: “Today, Together: Today, together we are treated. Tomorrow, we need a cure!”
On one day, 22 September 2017, one community across the globe stands together to raise awareness about one life-changing reality – living with chronic myeloid leukemia (CML). On World CML Day simultaneous events, publications and meetings are taking place on all continents. All activities are being coordinated by the CML Advocates Network, a patient-run network comprised of 115patient advocacy groups in 86 countries.
Prof-Dr Syed Akram Hussain, Hematologist of Square Hospitals Limited (SHL) said that we need to place emphasis on raising awareness about one life-changing reality – living with chronic myeloid leukemia (CML) and combat stigma by raising the voices of those facing this cancer.
Shining light on the many inspiring individuals in our communities who have risen above adversity to grow hope and joy to others facing similar challenges is a must for all of us, added he.
“Advances in treatment and care have transformed CML into a disease where patients if treated effectively, have the chance to live a normal and long life.
“However, there are still huge challenges for patients with CML, which also vary from region to region”, said Jan Geissler, CML patient and co-founder of the CML Advocates Network.
Dr. Ebna Habib Md. Shofiur Rahaman, President of Bangladesh CML Support Group (who has been living with CML for 15 years) said that our challenges are manifold, such as access to high-quality therapies and diagnostics, treatment according to expert recommendations, adherence to therapy, effective side effect management, and development of a cure can only be tackled in partnership between patients, healthcare providers, and researchers.
He also added that especially here in Bangladesh, our key concerns are that access to treatment for the poorest patients and CML maintenance after the treatment.
The members of Bangladesh CML Support Group meet physicians, nurses, patients and caregivers for marking the world CML day every year in Bangladesh.